Sisters Running for Porphyria Awareness

We are two sisters dedicated to raising awareness and funds for porphyria through our summer running challenge. Join us in making a difference, one mile at a time!

Join us on this inspiring and impactful fundraising journey.
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May 20th-August 1st

Morgan's Journey

Morgan was diagnosed with Erythropoietic Protoporphyria at age 2. Here is a glimpse of her journey so far. These photos show the type of clothing she has to wear to stay protected as well as how her face swells up during a reaction. Morgan cannot go outside without covering up or she experiences an extreme allergic reaction.

Morgan is now on a drug trial that allows her more time outside before a reaction which is allowing her to participate in this run challenge.

Learn more about Porphyria

Visit the United Porphyrias Association

Learn more about Porphyria by visiting the UPA website linked here.